Adult Sickle Cell Disease Support Services
Along with physical pain, people with sickle cell disease and thalassemia face enormous social pressures.
The team at the UPMC Adult Sickle Cell Disease Program wants you to have everything you need to manage all aspects of your illness, and that includes providing you with counseling, group support, and other psychosocial services.
Sickle Cell Disease Resources
- UPMC Sickle Cell Advocacy Team (SCAT): Holds support group meetings, every three months at Hillman Cancer Center, for people with sickle cell disease and their families. Call 412-692-2534 for more information.
- Sickle Cell Society of Pittsburgh: Provides educational resources and other care to adults with sickle cell disease and their families.
- Sickle Cell Disease Association of America (SCDAA): Strives to enhance and improve the quality of health and life of those with sickle cell disease and their families.
- Pediatric Sickle Cell Program at Children's Hospital of Pittsburgh of UPMC: The only medical center in western Pennsylvania that offers comprehensive care for children with sickle cell disease.
- Ryan Clark's Cure League: Conceived by Ryan Clark — Pittsburgh Steelers safety and leading tackler — in partnership with the University of Pittsburgh and UPMC, Ryan Clark's Cure League raises money to fund sickle cell disease research, support patient care programs, and increase public awareness about this genetic blood disorder.