Sickle Cell Disease and Thalassemia Support Resources

Along with physical pain, people with sickle cell disease and thalassemia face enormous social pressures.

The team at the UPMC Adult Sickle Cell Disease Program wants you to have everything you need to manage all aspects of your illness, and that includes providing you with counseling, group support, and other psychosocial services.

Sickle Cell Disease Resources

• UPMC Sickle Cell Group: Holds regular SCD support, self-management, education, and advocacy group meetings for people with sickle cell disease and their families. Please email Dominique Stevens at stevensdj@upmc.edu or call 412-692-2534 for meeting dates and times.
• Pediatric Sickle Cell Program at UPMC Children's Hospital of Pittsburgh: The only medical center in western Pennsylvania that offers comprehensive care for children with sickle cell disease.
• Children's Sickle Cell Foundation: Provides programs to support children and adults with sickle cell disease in western Pennsylvania and surrounding regions, and an innovative Living Well With Sickle Cell online community open to anyone.
• Sickle Cell Disease Program of Erie: Provides services to patients with sickle cell disease in the Erie, Pennsylvania region.
• Sickle Cell Disease Association of America (SCDAA): Strives to enhance and improve the quality of health and life of those with sickle cell disease and their families. Please contact them for additional information at:
  
  

  Sickle Cell Disease Association of America, Inc.
  3700 Koppers Street, Suite 570
  Baltimore, Maryland 21227
  Phone: 410-528-1555
  Fax: 410-528-1495

• Sickle Cell Society of Pittsburgh: Provides educational resources and psychosocial support to adults with sickle cell disease and their families. Please contact Augustus Brown, PhD to request services at 412-371-0628.
• Ryan Clark's Cure League: Conceived by Ryan Clark — Pittsburgh Steelers safety and leading tackler — in partnership with the University of Pittsburgh and UPMC, Ryan Clark's Cure League raises money to fund sickle cell disease research, support patient care programs, and increase public awareness about this genetic blood disorder.

Thalassemia Resources

• The Cooley’s Anemia Foundation: Offers support and resources to people with all forms of thalassemia, but most notably those with thalassemia major.
• Thalassemia Information from UPMC Children’s Hospital of Pittsburgh: The only medical center in western Pennsylvania that offers comprehensive care for children with thalassemia.