Quyen Nguyen, MD
Medical Director, Adult HHT
Dr. Nguyen directs care for adults with HHT at UPMC. She is a pulmonologist and intensivist with 10 years of experience treating patients with pulmonary vascular disease in the Comprehensive Pulmonary Hypertension Program at the Comprehensive Lung Center.
She is board-certified in internal medicine, pulmonary medicine, and critical care medicine.
Adam Fish, MD
Assistant Professor of Radiology – Interventional Radiology
Director, Pulmonary AVM Program
Dr. Fish is an interventional radiologist specializing in pulmonary arteriovenous malformations (PAVMs), hereditary hemorrhagic telangiectasia (HHT), and thoracic vascular disorders. He leads the Pulmonary AVM Program at the UPMC HHT Center of Excellence, where he performs minimally invasive embolization procedures and provides longitudinal care for patients with HHT and complex vascular malformations.
Dr. Fish trained at Yale New Haven Hospital, home to the nation’s first HHT Center of Excellence. He is actively involved with Cure HHT and has authored multiple influential publications on pulmonary AVM screening, embolization outcomes, recurrence, and procedural optimization that are helping shape emerging consensus guidelines and best practices in HHT care. His work focuses on improving early detection, reducing neurologic complications, and advancing long-term outcomes for patients with HHT and pulmonary AVMs.
Suneeta Madan-Khetarpal, MD
Medical Director, Pediatric HHT
Dr. Madan-Khetarpal spearheads the HHT program at Children’s Hospital of Pittsburgh of UPMC.
She is a clinical geneticist who maintains active interests in both patient care and research. Dr. Madan-Khetarpal sees patients of all ages with suspected genetic disorders. She has a special interest in HHT management and research.
She's board-certified in clinical genetics, clinical cytogenetics, clinical molecular genetics, and medical biochemical genetics.
Beth Roman, PhD
Basic Research Director
Dr. Roman has been engaged in HHT-related research since 2002. The goal of Dr. Roman’s research is to understand how the gene mutations in people with HHT affect the way cells process signals that cause blood vessel malformations.
This knowledge may allow us to design therapeutic strategies to correct the cells' mistakes in HHT patient and help ensure development of proper connections between arteries and veins.
To make an appointment or refer a patient, call the HHT Center of Excellence within the Comprehensive Lung Center at 412-648-6161, or email us at PittHHT@upmc.edu.
Please let us know if the patient is under 18 so we can schedule care at UPMC Children's Hospital of Pittsburgh.
Mylinda Massart, MD, PhD (Director)
Learn more about genetics and primary care medicine.
Jessica Sebastian, MS, CGC
Genetic Counseling (Pediatrics)
Natasha Berman, MA, MS, MPH, CGC
Genetic Counseling (Adult)
Roy Smith, MD
Hematology (Adult)
James D. Cooper, MD
Hematology (Pediatric)
Shawn C West, MD, MSc
Cardiology (Pediatric)
Daniel Bellissimo, PhD
Clinical Genomics
Svetlana Yatsenko, MD
Cytogenetics
Douglas Kress, MD
Dermatology (Pediatric)
Andrew A McCormick, MD
Diagnostic Service/Vascular team (Pediatric)
Ken Fasanella, MD
Gastroenterology (Adult)
Leah Siebold, MD
Gastroenterology (Pediatric)
Jaideep Behari, MD, PhD
Hepatology (Adult)
Dana D. Cummings, MD, PhD
Neurology (Pediatric)
Eric Wang, MD
Otolaryngology (Adult)
Amanda L Stapleton, MD
Otolaryngology (Pediatric)
Geoffrey Kurland, MD
Pulmonary (Pediatric)
Professor, Structural Biology
