Caregivers may be spouses, partners, children, brothers, sisters, and friends. They may provide care for only a few months, or for several years.
Although being a caregiver may be a rewarding experience, it also can be frustrating and stressful.
Caregivers may have a variety of emotions and needs after their loved one has had a stroke.
Those feelings may include:
- A sense of isolation
- A fear that the caregiver cannot provide adequate care
- Guilt
- Frustration
- An intense sadness
- A fear of abandonment by family and friends
These feelings are all normal.
Taking Care of Your Life, Too
There are several key things to remember as a caregiver, primarily to take care of yourself and your needs.
- Remember that caregiving is a choice that people can fall into unexpectedly. Do not let your loved one’s recovery and rehabilitation always be the only focus.
- You deserve good health and quality time to yourself. These two things may be the best gifts you can give to your loved one.
- Caregiving is not a one-person job. Look for, ask for, and demand help if necessary. Ask your family members and friends to help with respite care.
- Accept help and suggest things for people to do. Likewise, be aware of what you can and cannot do. Set realistic goals and priorities.
- Educate yourself. Learn about new medical treatments and ideas.
- Be aware of depression. Some signs of depression include:
- A loss of energy
- A change in appetite
- Feelings of hopelessness or worthlessness
- A loss of enjoyment about things that were once pleasurable
- If you feel depressed, do not delay in getting help. It is possible to get a referral for a psychiatrist or to get antidepressant medicine.
Stroke Resources for Loved Ones and Families
UPMC Stroke Institute
412-647-8080
UPMC Presbyterian C400
200 Lothrop St.
Pittsburgh, PA 15213
Resources for support or more information may include:
- Community organizations
- Local colleges, churches, and senior centers
- Hospitals and nursing homes
- Adult day care centers
- County social services offices and public health agencies
Visit the following websites to learn more about stroke and caregiving:
