Information for Stroke Caregivers

Caregivers may be spouses, partners, children, brothers, sisters, and friends. They may provide care for only a few months, or for several years.

Although being a caregiver may be a rewarding experience, it also can be frustrating and stressful.

Caregivers may have a variety of emotions and needs after their loved one has had a stroke.

Those feelings may include:

• A sense of isolation
• A fear that the caregiver cannot provide adequate care
• Guilt
• Frustration
• An intense sadness
• A fear of abandonment by family and friends

These feelings are all normal.

Taking Care of Your Life, Too

There are several key things to remember as a caregiver, primarily to take care of yourself and your needs.

• Remember that caregiving is a choice that people can fall into unexpectedly. Do not let your loved one’s recovery and rehabilitation always be the only focus.
• You deserve good health and quality time to yourself. These two things may be the best gifts you can give to your loved one.
• Caregiving is not a one-person job. Look for, ask for, and demand help if necessary. Ask your family members and friends to help with respite care.
• Accept help and suggest things for people to do. Likewise, be aware of what you can and cannot do. Set realistic goals and priorities.
• Educate yourself. Learn about new medical treatments and ideas.
• Be aware of depression. Some signs of depression include:
  • A loss of energy
  • A change in appetite
  • Feelings of hopelessness or worthlessness
  • A loss of enjoyment about things that were once pleasurable
• If you feel depressed, do not delay in getting help. It is possible to get a referral for a psychiatrist or to get antidepressant medicine.

Stroke Resources for Loved Ones and Families

UPMC Stroke Institute
412-647-8080
UPMC Presbyterian C400
200 Lothrop St.
Pittsburgh, PA 15213

Resources for support or more information may include:

• Community organizations
• Local colleges, churches, and senior centers
• Hospitals and nursing homes
• Adult day care centers
• County social services offices and public health agencies

Visit the following websites to learn more about stroke and caregiving:

• American Stroke Association
• Children of Aging Parents (CAPS)
• Family Caregiver Alliance®/National Center on Caregiving
• Health Hope Network Stroke Support Groups
• National Alliance for Caregiving
• National Family Caregivers Association
• National Stroke Association™